National Organization for Rare Disorders | NORD
Dec 18, 2025 · We provide information about rare diseases, patient organizations and other resources. We also promote awareness of rare diseases among physicians and other medical …
Genetic and Rare Diseases Information Center | GARD
Discover resources, disease experts, or clinical studies for a rare disease. Important: GARD provides information about rare diseases for your general knowledge and is not a substitute for …
Genetic and Rare Diseases Information Center
Dec 13, 2024 · The Genetic and Rare Diseases Information Center helps people find useful information about genetic and rare diseases.
Home | Rare Diseases Clinical Research Network
We study more than 200 rare diseases at clinical centers across the nation and worldwide.
EveryLife Foundation for Rare Diseases
Dec 19, 2025 · We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access …
Rare Diseases International
Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.
Orphanet
Orphanet is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. Orphanet aims to …
Diseases | GARD
Explore GARD's list of rare diseases. Filter by category or search by disease name, acronym, or synonym. Rare diseases found on GARD should not be used as policy statements of NCATS …
Rare Disease List | Explore and Support Rare Diseases — Rare …
Discover the comprehensive list of over 7,000 rare diseases, resources, and community support at Rare Genomics Institute for awareness and research.
Navigating a rare disease? The Genetic and Rare Diseases …
Aug 8, 2024 · On their website, you’ll find current, reliable, and easy-to-understand information on thousands of rare diseases. Information is available in both English and Spanish.